Tag: cancer

Wow It has been 4 Months Since I’ve written!

My last post was actually in january 2024, fresh into the throws of my recent primary CNS Lymphoma diagnosis with a brain filled with tumor, mush, and swelling to the point of almost being unrecognizable as a brain by the time I had my brain surgery to get a cell sample. Fortunately, I was in the right place at the right time because I started crumpling like a piece of paper. It was like everything was spiraling out of control very fast. Suddenly I didn’t know my name or where i was or my birthdate. I just sadly shook my head at the neurosurgery check in lady. Thank goodness my husband was with me. He helped fill in the gaps. I underwent my brain surgery and slipped into an encephalopathic coma complete with seizure, swelling and the whole nine yards. My poor husband had to watch all this develop right before his eyes. He stayed with me the whole time I was in the coma, holding my hand, singing to me, trying to reach the me inside unconscious me any way he could. He didn’t give up! He kept telling everybody that they just didn’t understand. This was the fiercest, most beautiful brain they had ever seen and they had to save it!

Well, thank goodness we got there when we did. Once we started treating my seizures and started decreasing my swelling with steroids, voila I woke up days later! Awesome! However I am told that I was not exactly me but more of a smiling simpleton, picking at my brain surgery incisions. Oh for heaven sake. Things continued to improve in the icu and then I got to be transferred to rehab to relearn how to walk with balance properly ( Dang that brain is in charge of a lot).

Then after I finished rehab it was time to get a picc then a port placed and get the chemo started! This still didn’t happen until January but I was grateful it was happening at all. Now fast forward to May now. Weekly high intense chemo cycles for a total of 8 cycles, plus oral chemo. week in the hospital at a time. You see the particular chemo I was getting this time had to be cleared enough out of the body for me to go home without exposing somebody. Yikes.

Now the 8 cycles are over and my brain looks like a real brain again and I actually feel fully functional mental status wise but still get exhausted. I am so grateful just to be able to open my eyes in the morning. I was ready to be done with all this but the thing is, you are never really all the way done. I still have follow up to do for my first cancer and I always will but I am down with that! Let’s keep vigilant! Let’s keep paying attention. Let’s keep self-advocating.

The real truth of the matter is that I have had two totally different lymphomas in 3 years. That is not ok and a brisk pace to keep up. Would I keep doing it if I had to? Hell ya, I got too much to live for. But if there is an option out there that would possibly give me more time off cancer? Yes there is. This is the stem cell transplant I was talking about. First steps are shooting yourself full of granulocyte colony stimulating factors to make your lymph and bone marrow cells multiple like an army within! Thats a lot of hard work creating your own army. There are significant aches and pains involved, but I got through it. When the day came to retrieve the stem cells, I broke a record. The process was supposed to take like 8 hours and generate 3 or 4 million cells. Well it took me like 4 hours and I kicked out 11 million. They actually had to stop me early! WOW!

Now you take a few days off to rest and get admitted back to the hospital for cannon ball marrow ablating chemo for 8 straight days to zap you down to nothing. Rest again and put the health stem cells back. Let’s hope this works! I’ll let ya know.

Be well

Dr. Katz

I can’t believe I am doing this again.

Hi guys. Long time no write I realize. There has been a crap ton of stuff going on. I have cancer again, for the second time in three years. This time instead of Hodgkins, I have large b cell primary cns lymphoma. That means I have a monster brain tumor. Yuck. This means two different cell lines within three years. This means I have a stem cell issue and am probably looking at stem cell transplant on top of months of chemo. This mean months in the hospital away from my family and other people I Iove. To even say the words brain cancer out loud are terrifying. It’s the kind of thing that sends a little shudder of terror right to your heart. I can’t help it. it’s true. It’s a scary thing. I personally feel it shouldn’t happen to anybody…lol. It’s one of those things that I cannot spend a lot of time overthinking about. The fear could paralyze you if you let it. Life must go on somehow, no matter how much you have left. I realize that this one could finish me but I am not going to let it stop me from living now. I am going to do everything I can to stay for myself, my family, my friends and my patients. I am determined to make the most of my life. 

I am about to change direction and tell you what has been good about this diagnosis. I realize that that sounds ridiculous and counterintuitive, but just listen for a minute. The overflowing vast amount of support has been amazing and warms my heart. It reminds me of all the blessings I still have despite my diseased brain. My staff, friends, family and patients have been amazing and I could not be more grateful. It reminds me that I am a good person who has spread positivity and helpfulness into the world and now people are trying to give it back. No matter what happens, I will try never to forget that. Thank you. Thank you from the bottom of my heart. Stay positive and fierce people!

Dr. Katz

It’s today it’s today.

As my lymphedema gently nudged me awake from my slumber this morning, I suddenly realized that today is a huge mental load. Today is exactly two years from the day I bolted awake with a feeling of dread, a big lump on my neck and the unconfirmed knowledge that something was horribly wrong. Even though my diagnosis was not confirmed until about two months later, that is where my journey truly started. I should have realized it was coming. On the surface, I was suppressing the memory, but my body knew better. I haven’t felt like myself in days. I had some random panic attacks. My fibromyalgia was flaring like nobody’s business and I got my first migraine in a long time. Now it all makes sense. I was refusing to acknowledge my internal ptsd out loud, but my body was doing it for me.

It occurs to me, now, two years later, that I really need to change my strategy. I have made it my mission since cancer to just keep swimming and pushing and to let nothing hold me up or get in my way anymore. I am always in motion, even if I don’t feel well. I sometimes ignore the need to take a break, because I am afraid that it will slow me down enough that I will start to dwell even more on everything that has happened to me. I also spend too much time chastizing myself for my own thoughts because I assume that my trauma clearly wasn’t as severe as a lot of other people’s.

And where is that getting me? NOWHERE! That gets me panic attacks and prolonged fibromyalgia flares and even more missed time doing what I love. I’ve got it all wrong and I need to change my strategy from constant movement to actual acknowledgement. I need to process and acknowledge/accept? what has happened. Otherwise I cannot really move forward. I read a great article in GoodTherapy magazine from May of 2011 written by Susanne Dillman, PsyD. She said that true acknowledgement of trauma is absolutely necessary for healing to begin. She points out that there is no real hierarchy of pain. Trauma is not scalable. This is a belief that is more flawed than accurate. So, me trying to downplay my trauma and compare it to others is getting me nowhere and I need to stop. She says that trauma lies at the utmost extreme of human experience and there is nothing ordinary or expected about it form the individual’s perspective. You cannot compare the danger, horror and fear involved, regardless of the content. The experience is your own. Once something is extreme, trying to rank how extreme it is is useless.

She also points out that you are literally blocking your healing journey by not acknowledging your trauma because you are denying yourself any sense of self compassion. Healing is the only way to truly detoxify trauma. I don’t think she is talking about sitting back and completely wallowing for weeks at a time. She is just saying that you need to realize that it is real and allow yourself to feel in order to get truly past it.

Dr. Katz

December 12th is coming and I’m freakin out!

Dec 12th…..Dec 12th 2020. It’s where it all started. The morning I woke up feeling like I was choking with a voice yelling inside my head to get up and look in the mirror. Whether it was my own gut instinct or my late father I will never now. That morning changed my life. I did get up. I did look into the mirror. I saw the lump on my neck and off I went. It was the beginning of a battle of fear, frustration, and anxiety as made my first steps toward my cancer revealing itself and everything that followed.

Well, that was almost two years ago. I thought I was getting better at letting it go. I really did but nope, here we are. It’s less than a month away and suddenly the panic attacks, the anxiety out of nowhere, the wondering about every little symptom is all back. It is PTSD at its best/worst. I can’t really believe how long it took me to figure it out. I guess I had to waste time beating myself up for having anxiety first. We all do. Then it hit me! Of course. The anniversary of one of the most traumatic times in my life is coming up! What normal brain can completely let that go? That trauma gets stored and buried, with significant effort from me. But, even I can’t hold it back all the time. Lord knows I try.

So, what do I do? I can’t keep fighting to suppress it. That will only keep me prisoner to it longer. I have to acknowledge it! I have to embrace that it is real and that it happened and that it affected me in ways that I still don’t fully process. I have to actualize my own feelings about it. The only way to be free is to go forward through it when the feelings flood me. The only power I have is the power to see it for what it is and decide how I want to proceed. The choice of direction is actually completely up to me. I could allow a day( or two or three) to break down and crumble. I could stop functioning. Or, I could move forward and use the experience for good. They say that the final stage of healing occurs when you are able to use what happened to you to help others. That is what I have chosen and continue to chose. I have written my books. I am giving my talks. I am helping other cancer patients. I help other people “get their mind right” for the battle ahead. I share knowledge every day to help give people some sense of control as to what is happening to them. These are the battles I chose to fight every day. These are the battles I want to win. I realize that my past trauma is still with me. I cannot change that, but I can chose to change what I do with it.

Dr. Katz

It’s Easter

To me, first and foremost, Easter is about the resurrection of Jesus. I get it. But, also for me, there is a lot of other things to celebrate on this day too. There has been so much rebirth everywhere. From the minute details of the daffodils blooming to the emergence of myself and my husband from illness to the rejuvenation of old relationships: there is a sense of fresh start everywhere.

Second chances are everywhere, if we take advantage of them. I think this applies not only to religion, but to life in general. I have to admit, there has been so much change to take in that sometimes it’s overwhelming as well as wonderful. I am sometimes not sure how to process it all. I make sure to never let it overwhelm my sense of gratitude, but I am noticing that there is still an underlying sense of anxiety and “waiting for the other shoe to drop” again in my every day life. It seems to be affecting my whole family as well. I think it’s just normal with everything we have been through lately.

I realize that I need to make a conscious effort to keep moving forward, and to help my family move forward with me. We need to make the absolute most of and learn from these second chances. We need to focus on what gives us joy, even if it is something as small as watching my grandchildren hunt for Easter eggs or as monumental as hearing that my latest scans are clear.

So, as you gather with family and friends today to celebrate our Lord, also take time to celebrate each other and life in general. Take nothing for granted. Embrace every opportunity. Learn from each other and your own mistakes. Savor every moment.

Have a happy and blessed Easter.

Dr. Katz

There is so much to say

Buddha Quotes positive attitude

Hello there! Long time no write. It has been an interesting month to say the least. My head has been spinning with a little bit of everything lately, to the point that I didn’t really know how to put into words that would make any sense. I am going to give it a shot now.

First and foremost, I feel so grateful just to be alive. I remind myself to take note of this every day. It was not guaranteed by any means. 2021 was just a shit show of one inevitable thing after another, not to mention trying to be vanquished by lymphoma. Well! I showed that stupid cancer who’s boss! But, almost a year later, I am still not quite me yet. There have been so many side effects and setbacks and I just had to sign a different consent form that added about 6 new pages of warnings and potential complications for chemo that I already had. But, I just keep on taking the hits like a prize fighter and keep on plugging.

Second, I am so grateful that my husband is alive. I was barely a couple feet in the rearview from chemo when he tried to croak and had multi vessel open heart surgery, without having any high cholesterol or anything! Talk about terrifying and out of the blue! Helping him rebuild both mentally and physically has been one of the greatest challenges of our lives. If we allow it, the what ifs could easily overwhelm us. I just keep saying no!

Third, I am grateful that my kids are healthy, at least physically. Let’s face it. Almost losing both parents in one calendar year hit them like a ton of bricks, even though they tried not to show it. They wanted to spare our feelings and not have us worry or feel guilty. Too late for that. I watched their struggle to process and still give themselves permission to carry on with their lives. There is no more hopeless feeling than knowing your kids are fighting a battle that you just can’t help with or fight for them, but that is partially caused by you. I get it. Feeling guilty does not solve or remedy anything. I just can’t help it.

Fourth, the ongoing business struggles between the pandemic and the after effects of me working less during my cancer treatment and trying to help when my husband was ill are still catching up with me. Not a whole lot I can do about that besides keep working my ass off. On the other hand, I feel very fortunate to still have and own my business after everything that has happened. I’ve always said that I am not in it for the money anyway…lol

Last but not least, there IS something that really keeps me going lately in a good way. Want to know what it is? It is my positivity. What do I mean by that? Well, I DON’T mean that I wear rose-colored glasses and have unrealistic expectations that set me up for failure. I DON’T mean that I skip around singing like Snow White all day. I mean that I am still able to help people every day, no matter what has happened. I truly believe that my positivity has impacted people all over, even in some of the toughest, most defeatist cases. I feel like it is really working and spreading to everyone around me. I truly believe that I have been able to be the metaphorical flashlight that I was aiming for to lead other people through dark times. I realize that I haven’t been able to get to everybody, but I will never stop trying. I think the key thing for me to remember is that I am keeping positive and advocating and pushing because I want to, not from some sense of duty or obligation.

So, let me bottom line it for you. There is a lot of crap still going on, but I am staying positive! Join me will ya?

Dr. Katz

I pinky swear I haven’t forgotten how to be grateful. I’m just not taking things as well.

See the source image

The last couple of years have been really hard. My children were sick. We have all been “living” with a pandemic raging around us. I battled cancer. My husband tried to die from a heart attack. The list goes on. I know I know. You all know this already. Despite all this, I have continued to make it my mission to be a beacon of positivity unlike the planet has ever known. I am constantly in search of the bright side or the retrieval of the positive, no matter how small a portion it is. I get signs from the universe all the time that this is what I am supposed to do. I have had complete strangers reach out to me for help and guidance, which I love and I am happy to give. That is truly me in my element: helping people. I wouldn’t trade it for the world.

So, I have spent all this time being tough and positive…still am. However, I find myself struggling a bit lately. It’s all fun and games when everything is going my way, so to speak. But, I have noticed sometimes, that when something doesn’t, it kind of crushes me for a hot minute before I can get a hold of myself. I start resenting and complaining, or freaking out all together. This kind of reaction is somewhat foreign to me and I find myself saying “Whoa Katz. Get a grip why don’t ya? You have been through way worse shit than this for chrissake!” ” You are alive! Does anything else really matter?” Most of the time that works, but I find myself having to do it more and more often lately and that bothers me.

Part of me realizes that there is an element of PTSD circulating around my brain with my serotonin, trying to convince me that there is only a matter of time before another shoe drops. It insidiously permeates my life still, forcing unreasonable reactions and fears. It is pretty par for the course after what I have been through. I think that my goal for now is to stop trying to push it away and acknowledge it and deal with it. I think that by trying to suppress it, I am actually giving the PTSD more power than it already has. I assure you that I have been taking all the outward steps: showing up to counselling, reading about it, talking to myself like I said, nodding when my therapist explains it to me. But, I really haven’t been doing the internal work. I have been so busy pushing forward toward my happiness mission that I haven’t really allowed myself time to recover or react.

This really smacked me in the face last Friday. I went for my routine mammogram. Some of the same techs were there that were with me last year when all my cancer stuff was ramping up. I got my mammogram done and those 45 angle views really pulled at my lymphedema on the side of my neck and it started to throb and hurt. Everybody did everything right..and I should have expected this to happen and prepared, but I didn’t. Instead, I laughed it off at the moment and went upstairs to my office, only to start bawling my head off in a flood of cancer memories the moment my MA asked me if I was alright. I just couldn’t stop. One memory/flashback after another started just flooding me over and over. I actually had to leave the office and felt really guilty doing it on top of it. I knew I just couldn’t be my best self for patients though. I literally cried half the day as I reexperienced everything from the whole last year all over again. Sheesh.

My point is, that I really have missed the boat on recovery and reaction somewhat. The strategy I thought was helping me “not to wallow” was actually preventing me from processing what was going on with me. I pushed it down and just kept pushing forward instead. By not allowing myself the time to really go through things…..while I was going through things…..I didn’t really do myself any good. Sure, I got through my cancer experience and survived. That is definitely a win. But, I bottled so much stuff up that now it bubbles over when I don’t expect it. That’s no good either.

The bottom line is that I am very grateful to be a survivor and I love helping others survive whatever they are going through, life-threatening or not. But, in order to truly survive and thrive on top of that, I have to allow myself to process and react to experiences when I have them. I need to not punish myself or second guess reactions and just….have them. I have to realize that, no matter how tough I am, I am still human. I need to give myself the same consideration and time that I give to everyone else. I promise that I’ll work on it.

Dr. Katz

My colonoscopy experience was awesome!

Ok. Ok. I know what you’re thinking. Eeew. How is that possible? There is nothing good about a colonoscopy. Am I right? Well, yes, you are right. A colonscopy is kind of shitty…pardon the pun. What I am really referring to is the experience and how I was treated. Let me explain.

I chose to have my colonoscopy NOT incognito, but at my local hospital Promedica Monroe Regional, where I go to work every day. Trust me, these people have seen the best and the worst of me for over 20 years now. They have saved my life multiple times, helped me in the OR, helped me deliver babies, etc. We have listened to each other. We have complained together and rejoiced together. Sometimes I see them more than my own family. But wait, they are part of my family! They are just not the family I live with. So, why not let them in on my health too?

From the moment I walked in, all crazy haired and no make up on,(yikes) they greeted me like family. We joked and laughed while they checked me in, while still making sure that all the proper protocols were followed. They managed to treat me like a patient, a doctor, and a family member all at the same time. Bravo! I almost cried…literally. Everybody stopped by to see me. They explained things as if I was fresh off the street with no medical knowledge. That might annoy some people/docs but I love it. We should explain everything to everybody. You never know if you might have a total brain fart about something you do every day….when it’s actually YOUR turn! As a matter of fact, I was stressing more about this stupid colonoscopy than I did about all my cancer stuff and chemo and procedures for the last year and a half. What the heck?! It was as if I just couldn’t handle the thought of maybe even one more thing being wrong. Thank God they treated me like family. It put me at ease right away. They went over and above. I have never considered myself on any sort of VIP terms because that’s just who I am. I even asked them why the special treatment? You know what they said?

Doc, you been through a lot and we all love you. We just want to take care of you like you take care of us. You are one of our own. I think my heart about burst out of my chest, in a good way, right at that moment. I realized then that they do see me. They see how much I care. They see how hard I try every single day, because I want to not because anyone tells me too. We have a mutual respect. I try to treat everyone well in the hopes that they treat me well. That’s what a team should be. It’s what I love about what I do. Well, I have to tell you, the ProMedica Monroe Regional Hospital team was the best I’ve ever seen! See you at work Monday guys! I love you!

Dr. Katz

It’s Just a Little Tougher to Bounce Back Nowadays

Wow. I have to say that having cancer has brought about more change than I realized. I think I tried to partition the whole experience in my mind as a discrete entity with a finite beginning and end. It somehow made it easier to trudge through with a positive attitude when visualizing an actual light at the end of the tunnel.

After the end of chemo, I am slowly realizing that, while that visual was helpful, it was not necessarily realistic. My journey did not abruptly end when chemo did. As I have discussed before, there have been many after effects and pitfalls since and I am learning about new ones every day. Each one I try to embrace, while fighting the little chip on my shoulder that I have to deal with it in the first place.

Most recently, I got my first actual illness outside of chemo in the first two and a half years. Yes. It’s true. Now that I think about it, one little-publicized actual positive side effect of the pandemic has been that we all have had less of the regular sick season viruses, etc because we have been wearing our masks, not doing as much, washing our hands, trying to avoid sick people, and not touching our faces as often. Granted, some of these precautions (like hand washing) should not have been new additions to our routine. Nonetheless, they have all contributed to less routine sickness. Anyway, my point is, that I haven’t really been sick in over two years. So, when I got this crappy gi virus, it really through me for a loop. Number one, believe it or not, I wasn’t really used to being sick. ( I get it. That sounds ridiculous considering I just went through cancer and chemo.) Number two, I was that much more stressed out about the repercussions of missing work because the economic strain has been significant from all the previous missed work. Number 3, it hit me a lot harder than I remembered from previous illnesses. Number 3 is what got me the most. I am just not bouncing back as fast I think I should be. There are a lot of reasons why that could be true. One could be my loss of perspective on being sick outside of chemo. Another could be that chemo has left lasting side effects that keep my body from fighting off sickness as well. My kidneys are not working as well so I get dehydrated more easily. My thyroid is still dead so I get fatigued and my metabolism is altered. The list goes on. You get it though right? There are plenty of reasons for me to have trouble bouncing back from regular illness. So, I shouldn’t worry, obsess, and beat myself up about it. But, alas, I do. I get distracted and instead of doing things to help myself get better, I waste time feeling guilty about who I am letting down this time, as if I haven’t left enough people down with all the cancer stuff. It’s kind of a vicious cycle.

So, here’s the thing. What do I do about it? The fact of the matter is I am the only one that can do something about it. NO one is making me feel this way but me. The guilt is all mine. I have to make the decision to accept this one more thing about surviving cancer. There will be changes that last long after the cancer is gone. They are not my fault. They are not my punishment for things done wrong. They just are. I can chose to move forward…or I can chose to be held back by things that I cannot control. I say forward it is. Otherwise, my recent win was all for nothing.

Dr. Katz