Tag: strength

Let’s Goooo!

Ok guys. Here is all the latest and greatest updates. My brain is cancer free and looks positively boringly normal! Yesss!

My vision is 20/15 with my glasses on and I am able to get rid of my bifocals! Yess!

My memory is doing pretty awesome and a lot of the short term loss has returned. Yess!

I am able to do complex puzzles and remember strings of 12 numbers. Yess!

My energy is good. I still have to have the occasional power nap, but who doesn’t? Yess!

My hemoglobin is finally in the normal range! Yess!

I am inches away from being granted full functioning privileges at the hospital with no restrictions! All the paperwork is in. Yess!

Obviously, I still have some precautions to follow with my baby immune system and all and I still need to get revaccinated for everything. But, it is truly time for everyone to bring the level of worry down to a healthier level. I totally get and appreciate all of it and I understand all of it. But, it is time to climb down from def con five level. We have done it folks! It is time to celebrate and live! I promise everyone that I am not going to do anything that I don’t truly feel ready for or that could put myself or anyone else in danger. Let’s do this! Have a great day!

Dr. Katz

OMG I might get to go home in 2 or 3 days

As you all know I am plodding and racing at the same time to complete my stem cell journey hospital stay portion. I have been putting my steps in, keeping mobile. Gobbling all the antibiotics for all the infections. Trying to stay moving as my hemoglobin drops in over half. Having diarrhea all the time. Trying to croak just days before. A lot has turned around in a fast pace (if you can call a whole month in the hospital fast). This is girl is super grateful and happy to be alive. That Is the main glowing thought on my brain right now. I am filled with happiness and hope. I can swallow and sort of taste food again. All wins.

Naturally my family is nervous about me coming home. They don’t want me to rush. I tell them not to worry. That is definitely not what is going on here. There has been no rushing. I have no great impetus to hurry home in a rushed fashion. Of course I would love to go home…when it’s safe. I told them we have to trust that my doctors aren’t just trying to get rid of me. We are trying to strike that fine line of compromise and safety. If it ends being earlier than we thought, sounds like a win to me for all mine and their hard work. We have spent too much time with being scared. Now is the time for cautious optimism not fear. We have come too far. The doctors believe in me. My family can believe in me too. I know they can. Cheers to the thought of going home and beginning the next part of the adventure!

Dr. Katz

I really gotta concentrate on living right now and getting back home where I belong.

Boy this stem cell is tough. It’s really really tough. I have had to go through some really tough things before but I think this one is at the top of the list. I mean, I was prepared before I got here for this that is was going to be a rough road but sheesh it is exceeding even my pre expectations. I always like to consider myself a really prepared individual but I think it is impossible to completely prepare for something like this. You don’t really know, despite all the words, how it is actually going to be until you start doing it.

Let starts off with the first part. I am affectionately going to refer to it as the cannonball chemo part of the process. This is the part where they give you day after day of marrow ablating chemo to prep you for the process. I guess most people get two drugs. I got three. I guess most people take about 5 days to complete this process. Well I got so much chemo that it ended up being 8 straight days before any “rest time” was upon us. I asked why I got all the extra over the usual crowd. The answer was that they just knew I could handle it because I was so tough. Ummm. Thanks? But eek no thanks at the same time.

Of course. I did it anyway because it was what was recommended. I am one of those patients who tried to tread the line between following all directions and still advocating for myself. It’s a tough line sometimes. Ive noticed over the years that medical professionals are definitely not used to patients that are knowledgeable and engaged. Sometimes I feel like they see that as a threat and that they are just being inappropriately judged and questioned. Well that is definitely not the case in my case but it hurts my heart a little to think that maybe some medical professionals are not confident enough in the treatment they are giving to be threatened by questions. Personally I totally dig it when a patient is an active and knowledgeable and engaged team member. This totally makes my day. I wish everyone felt the same way. I think it would help us to better care for patients. It just makes the whole thing go better when you don’t just have a terrified submissive patient that doesn’t totally understands but just goes with what you say. I say this is never a good scenario and it is our job to reinforce to the patient that they, in fact, are the captain of their medical team and in charge of their bodies and their care, It has to be a balance of trust and communication. It is so important.

I get it that there are times when doctors just need to act and tell you what to do, especially in an emergency situation. Me back in December, head full of tumor and mush, suddenly collapsing after not being able to even remember her name or birthday and underwent emergency brain surgery. Scary crap and I get that there wasn’t really a lot of opportunity for my input at that time because I wasn’t even conscious at the time. Thank goodness the doctors took over and convinced my husband to stay put so they could forward with my surgery, get a sample and abruptly begin to halt the seizures and swelling that were going on in my beautiful but tortured brain. Thank God they did or I wouldn’t be here right now. Very grateful for that.

Sorry, back to present times again. I am nearing the point of the end of the inpatient stem cell journey. My counts have already done their plummet. My hemoglobin is down to 7. My platelets are barely measurable and I am super exhaustedI I had a scary time trying to go septic just days ago. Like, we could have been done septic. Yikes.

Well, I am very happy and grateful to report that today is starting in to the final path to the end of my hospital stay. Counts are trying to go back up. I am starting some cell stimulating injections and they say I could go home in as soon as a week. I can’t walk around in the hall anymore because of some opportunistic infections and that is frustrating because i want to be a part of my own recovery. But, it has given me time to sit in my room isolated and have time to write. See? The silver lining is always there if you look hard enough. I always try to maintain my not foolish but productive positive attitude. I really think it helps.

So, here’s to the next few days until i can get home to see my family, my pets, and my friends, and maybe even sleep in my own bed. I know that there will be no parties or large gatherings for months. But I’m doing this now so there can be later. Wish me luck!

Dr. Katz

I just don’t know how to feel.

So, as I understand it, the end is near for my cancer treatments. This week is supposed to be the week. The last chemo. Wow. Just to say it out loud is really something. It doesn’t even seem real. Could it really be true? Of course, when I speak in terms of the end, it is not really the end. The next five years of my life are pretty well mapped out with follow ups and scans and appointments. It is really at the end of those five years that it is really “over,” not just at the end of chemo. There will always be that little forever shadow monkey on my back that things could take a turn for the ridiculous again.

I would be lying if I said that I am not excited about the prospect of chemo being over. But, weirdly, at the same time, I am a bit terrified as well. No more chemo?! While that means, hopefully, no more of the awful side effects after they all wear off. It also means no more internal liquid defense system. It also means that there could be more opportunities for the cancer to creep back into my life. Hmm. How will I know if it is coming back? In the interest of respecting the post traumatic stress aspect of being a survivor, I made a promise to myself not to panic at every little twinge or symptom that I experience after treatment is over, but should I? Or should I be hypervigilant? I don’t really know the right answer.

I am looking forward to feeling like myself again, to having stamina, to being able to exercise, to being able to have hair again (hopefully completely different and thick and amazing), and to feel, dare it say it, sexy again. But, I hear that that is going to be an additional wait as well. I have been told that it can take up to six months before patients feel back to baseline. This kind of statistic just makes me anxious because I suspect that it will be a natural tendency for everyone, including myself, to expect me to pick up right where I left off before treatment as far as work and life in general. I have a gift for putting extra pressure on myself and I am sure this will be no different. Well, at least I am consistent in that regard…lol

Basically what I am saying is that I am kind of all over the place right now. I have no idea how to feel. Part of me is ready to throw caution to the wind and literally have a party( socially distant of course) to celebrate the end of this chapter. The other part of me realizes that there is a whole lot of other stuff to consider before the party can begin.

Dr. Katz

Sometimes it’s hard

Sometimes it’s hard

Hard to always smile

Hard to show a good face

Hard to have a positive attitude

But you know what’s harder?

Negativity

Frowns

Apathy

Each of those

more destructive than the last.

Not for me I said.

Not for me.

I need all my strength

To fight the real enemy.

Warriors

I looked around

and warriors were

what I found.

Young and old.

So many different

Stories told.

Some long and

Some mercilessly short.

No way to sustain their fort.

All with liquid weapons

of choice.

The only way to raise

their voice

Against a mutual

enemy within.

Even as their strength

wained thin.

Still fighting their

Own way.

Fighting to thrive

Another day.

Pushing for

themselves or a loved on.

Until their battle is

officially won.

You are stronger than you know.

These are the words on my right arm, complete with a tiny butterfly, making up my very first tattoo at the ripe old age of 49. This was a culmination of 20 years of thinking about them, yearning for one, and worrying what people would think if I got one. Gasp! A doctor with a tattoo? Would people see me as an entirely different person? Would they respect me less? Would they still take me seriously? Would I still look good in a short sleeve dress? It went on and on. You know what finally changed my mind and made me stop worrying? I finally realized that life was just too short to have it controlled by what other people think all the time.. Now please understand, this does not apply to all situations. There are some things that you should take into consideration the potential reactions of others. For example, if you are considering running nude into a colony of porcupines or considering lighting someone’s hair on fire or considering throwing your career in the toilet by attacking an administrative official….you know, those kind of things. You should really stop and consider the consequences before doing those….lol

I got that simple tattoo (followed by several others by the way…It is true what they say about getting addicted.) at a time in my life when my level of emotional despair almost had me at the breaking point. My daughter had some very serious health issues and we almost lost her multiple times and I was looking for any spot of hope or strength that I could tangibly sink my teeth into to hang on to. I tried counselling. I tried talking to family. I tried meditation. I tried medication. I felt like I was at the end of my strength rope. Then, it occurred to me that if I could have just a little visual reminder that I could get through this, something just for me that I could focus on whenever I needed to, then maybe everything would be ok. Thus the idea of finally going through the tattoo was born. I put it right on my right forearm too, a place that I had never previously considered because I couldn’t hide it if I needed to. It turned out that it was the perfect spot.

Interestingly, I waited to try to fall apart until after she had recovered. It’s as if my mind realized that it was ok to fall a bit now that the immediate crisis was over. I didn’t even get the tattoo until later and she was actually able to come with me. She helped with the design and the letters and the little butterfly that we added. I am not sure that she fully realized at the time why I was getting it and that was ok. She wanted to be there and I was grateful with my whole heart that she even existed for it to be possible.

Inner strength is a interesting thing. It seems that we can’t even define it without mentioning struggle or pain or brokenness. Maybe that’s is because our finest inner strength seems to emerge from waging mental battle and we can’t think of a battle without using those terms. Inner strength is defined as integrity of character: resoluteness of will; mental resistance to doubt or discouragement. Gandhi said,”Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength. People also talk about strength in terms of not hurting those who hurt you and forgiving those that have. Trent Shelton said,” Never be ashamed about being broken, because strength is nothing but pain that’s been repaired.”

It is interesting to me how inner strength and physical strength are not mutually exclusive. Strength itself is defined as the quality or state of being physically strong or the capacity of an object or substance to withstand great force or pressure. It’s the same word but with a much more literal meaning. The ability to lift a 500 pound dumbbell would qualify you as strong, but it doesn’t guarantee that you could also withstand a crisis situation. I am sure Gandhi could not lift 500 pounds, but his inner strength allowed him to be an anti-colonial nationalist and political ethicist who used nonviolent resistance to lead the successful campaign for India’s independence from British Rule. To me that is much more intrinsically valuable. I am by no means knocking physical strength, and it can be truly awesome to witness. I just think that inner strength is more intrinsically valuable. If I had to pick between Gandhi or Zydrunas Savickas ( 4 time World’s Strongest Man Champion) regarding who I would want in my life corner, I am going to go with Gandhi. Have a fantastic day everybody.

Dr. Katz