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Here we go again. Another scan is coming up. How many times have I done this? well, a lot. And every single time I start to notice the feeling of unecessary fear creeping up on me. Every twinge panics me. Every tingle freaks me out. Every sense of unexpected weakness scares me.
Seriously? Enough already. I know it’s nonsense. I actually know what it is and can, if I reach back really hard to life before cancer, I can recall feeling these exact same things and they were absolutely NOTHING to worry about. How I miss those days. Granted, I do pretty well most of the time now over six months out, but those close to the next scan times are tricky. Despite all the therapy in the world and all the work put into calming, I still get nervous and icky. So, I sit myself down and purge it all out by writing to all of you. Somewhere in my head I am telling myself that I can turn my feelings and strategies into some kind of validation, encouragement or hope for those of you out there that might be in the same situation. I hear you guys. This post cancer and scan ptsd stuff is real. Make sure that you are taking care of yourself. Make sure that you are taking a step back and allowing yourself some time to acclimate. Make sure you are taking the time you need to try to heal, no matter how long it takes. There is no set timeline. Everyone is different with different levels of strength and resilience. We will all get there, to that station of calm and peace, at least sometimes. Other times, we just have to try our best. It’s all we can do.
Dr. Katz
Ok brace yourself. I am going to say something that is initially going to sound a little crazy, but just bear with me. I actually consider myself lucky that cancer was my battle to fight. I know a ton of people right now going through things with as yet discovered causes and no specific direction or plan. It is an awful way to exist. The discomfort, the suffering, the lack of answers, the whole nine yards. The fear of the unknown is a real thing. I think it literally is an impediment to healing.
I am hear to tell ya, that my cancer was no picnic. To say that I am lucky sounds ridiculous to say. I get it that I am not lucky that I had cancer, twice in two years. Yes I know. What I mean to say more purposefully is that at least my demon was described and known and right in front of me, allowing me to have a definite target to tackle. It was terrifying for sure, but at least I had the privilege of knowing what I was fighting. It intensified my focus and enhanced my hope that there might be an end to the tunnel. Everybody I know right now that is battling does not have a set enemy in sight and no specific plan. Bottom line, I am sending out the discovery and healing vibes out to everyone I know that is battling right now. I am here if you need me. I am here to help strategize. I am here to help if you want me to.
Dr. Katz
I have held off successfully for 2 and a half years. I have boosted. I have vaccinated. I faithfully wear my mask without complaint, except for the excessive sweating. I have done everything i can think of and still, it finally happened. Yes. It sucks. I am congested. My head is splitting from time to time. I am very congested. Exhaustion is my new middle name. Everything hurts. The cough is like…are you kidding me right now? Is it necessary to literally throw my back out with every hack? Sheesh. Everyone is worried with my heath history as of late. The doctor wants to throw the latest antiviral my way.
I am going to say something that will probably sound quite strange right now, but bear with me. There is a part of me that is kind of like, “Whew, that is finally over” right now. What I mean is, I feel like I have been living in fear for the last two and a half years, waiting on the precipice of this amorphous unknown monster called Covid. There are times when I would almost have a panic attack if I found out that I was exposed. Well, the wait is over. I can stop walking on eggshells. I just have to power through this incredibly shitty cold virus cousin. Now that I have something to relate to, provided that I DO get through this like I intend to, I feel like I can let go of some of the fear. I realize that this illness can be deadly, but so can even a cold for some people. Anything can be potentially deadly in the right( or wrong) patient. When I say that I am ready to let go of the fear, I do not mean let go of common sense. I am still going to mask up in crowds, even if I am overheated and miserable. Yes I will. Because I realize that, even if it looks like it might not kill me, I still don’t want to get it again if I can help it.

I finally went on a vacation after almost two years. It was amazing. In the weeks preceding it, I became acutely aware of just how much I NEEDED it: emotionally and physically. I felt like every cell in my body was about to burst with the drive to get the hell out of town an away from everything: my environment, my routine, my town, everything. In between the vacation cravings came the vacation fears. What if something terrible happened to one of us? What if we didn’t get to go at all? What if we didn’t survive it? Let’s be honest for a moment. Each and every time we tried to have time off in the last two years, something awful happened. A pandemic started. Someone had a heart attack or, my favorite, someone got cancer. You see what I mean? The vacation fears almost took over the vacation cravings to the point that we felt jinxed just to utter the word vacation. We started saying pause or any other euphemism to avoid saying the word vacation. It’s ridiculous I know, but it’s what happened.
So, the big day finally arrived. We were all packed and ready to go, BEFORE 2 am the night before. This in and of itself is a miracle…lol We celebrated each mile stone with vigor. Hurray we made it to the airport. Hooray we made it through security. Hurray we made it on the plane. And then, the celebrations stopped because flights were delayed…and cancelled. But, we even made the best of that and just kept switching gears as fast as they changed.
Finally, we made it to our destination: sunny Key West Florida. I had never been. It was gorgeous and hot and sweaty. I was in love. I thought for sure that it would be smooth sailing from there. It was, sort of. I realized quickly that we both had forgotten how to really take a vacation. We were kind of anxious at first, waiting for the other shoe to drop and wondering how we would handle it so far from home. I think we each took our own day to fall apart a little and lift each other back up again. It sounds like a waste of time, but it wasn’t. We needed that time to absorb that it would be ok and that we would be ok and that we were allowed to just have fun and relax. We did get the hang of it eventually.
It ended up being a marvelous vacation, plane snafus at the end not withstanding. We did relax. We did have fun. We ate stuff. We did stuff. We saw old friends. We tried new things. But, after a week, it was time to get back to the real world. I realized the routine I had been so vigorously campaigning against before we left was not actually a bad thing. There is safety and comfort in the routine. For chrissakes, for the past two years life has been anything BUT routine until lately. If I am being honest, things were finally getting normal enough to even be able to notice a routine. I told myself that the routine was dragging me down, but it wasn’t really true. The routine just let’s me know that I am okay and that things are ok. That’s a good thing.
According to Diane Lang, 40 % of our lives involve routines. Routines give us a sense of structure. They give us a sense of accomplishment. They let us know that we are doing ok. They give us a pattern to follow. They are even important for our mental health. They allow us a sense of what we can control. I think this has been especially important during the pandemic. I know that for me, being able to establish a routine has been essential in my continued healthy survivorship after cancer. The bottom line is, routine are not so bad. On that note, now that I am home, I think it is time to get back to the smoothie. I missed it while I was on vacation.
Dr. Katz