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I know what you are thinking. Stop it already! You know that your next scan will likely be ok. You have no symptoms, besides the occasional panicking about something that is actually completely normal if you stretched back into your memory of life before cancers. Remember, regular twinges or the occasional floater in your eye are normal in your 50s! Stop freaking out. These are the kind of daily internal conversations that I have with myself in the month before each and every scan.
To be honest, I have had months of normal scans in a row so far. I went the extra thousand miles and had the stem cell transplant on top of everything. That is supposed to provide the possiblity of 30 years cancer free. That is really amazing and tantalizing to think about.
But, still, the pattern of worry continues. It doesn’t seem to really get to me until the month before the scan. This next one is coming up on Feb 19th so yep, I am smack in the middle of the month before.
If I take a step back, which I make myself do daily, I remind myself that I am now biking up to 10 miles a day, able to balance on one toe if I wanted to,having no night blindness, and not crashing into windows with my head. I am very likely to be ok…lol But man, I just need to see that scan report to believe that it is true.
All kinds of amazing things are evolving. I have a trip coming up. I have published four books. The last of my huge business debts are fading away. My family is healthy. All good stuff coming up. I am making the conscious choice to try to focus on those things instead. I really am.
The bottom line is, this scan-xiety stuff is for the birds. It is not very nice and it stays with you for years after cancer. It just is what it is. I am doing my best to deal with it and still try to live a full life at the same time, without acting like every single minute could be my last. Living life to the fullest is a good thing. Living life like it could be your last moment ever is kind of harsh. For right now, I am falling somewhere in-between and I keep hoping, and going to therapy, that this too shall pass.
Have a great day guys.
Dr. Katz
I have decided that tonight is going to be my best New Years in years. Am I going to be out drunk and ridiculous and unsafe? NO. Am I going to go party with friends? NO. But, I will be at home, eating fresh home cooked seafood with my husband and my cacophony of dogs and dog noise and dancing ridiculously to horrible 80s and 90s music with heavy bass and actually intelligible lyrics! Whooo!
Sounds boring? Well, I disagree. I have done a lot this year, all of it hard. I fought brain cancer. I fought my way back to consciousness after a coma. I managed to keep my business afloat and make sure all my employees were taken care of. I managed to begin digging myself out of the financial hole I was drifting and sinking down in with all the crazy stuff going on.
So, a little down time, me time, husband time and dog time sounds like just the perfect, normal and enjoyable thing. My positivity is soaring so high despite everything that I think it was literally reaching people even at McDonalds today when they gave me free food for a mistake that they did not actually make! Score!
So, everyone, I say have fun out there. Please be safe. Please savor life to the fullest. Have a good time and don’t do anything you will regret for longer than say 24 hours. Happy New Year everyone!
Dr. Katz
Just sitting here quietly on Christmas morning, listening to my gentle music Christmas blend, snuggling with my dogs. I am taking a moment to soak it all in. It just dawned on me this is the first Christmas in like three years that I am not either waiting for a terrible health diagnosis or in between cancers. Wow! That just hit me like a soothing wave of calm, mixed with excitement and relaxation in the mundane all at the same time. Yesterday I was doing my regular old last minute Christmas eve grocery shopping and I couldn’t have been happier. The business, the franticness of the other customers didn’t even phase me. I was so frickin happy to be shopping for my family like a normal wife and mother that I think I was practically skipping through the store. I know it sounds silly, but gosh I have been waiting for this feeling for a long time now. I am finally allowing myself to enjoy it, now seven months after discharge from my last hospital stay.
I know I am just really heady right now but I am soaking it up. Everyone deserves this kind of peace, even if just for a moment. Who knows if everything could revert back to unholy crap. Well, maybe it could. That’s how life goes. But, for now, I will just sit here with a smile on my face and let it sink in.
Have a wonderful holiday everyone! Sending many peaceful and joyous vibes.
Dr. Katz
What I am talking about is violence and abuse. Yes, that’s right, Violence and abuse, whether it be toward you, your kids, your relatives or whoever. It is everywhere and increasing every day. I am faced with an ever-increasing amount of patients who are facing this issue regularly.
So, what’s the worst that could happen? Well, someone could actually end up dead or permanently damaged in some way for one. Dead. Never coming back. Dead. Someone could end up permanently emotionally damaged and use that as an excuse to continue that style of behavior and life even into their next phase of life or worse, if they were an abused child or spouse, continue on to abuse their children or next spouse because that is the scenario they are familiar with or they are using that as their excuse. The things that I hear the most is ” I just don’t know what to do. or…That’s how I was brought up…or..That’s the same stuff I went through….or….It’s all I know.
These are the most heart breaking responses I ever here. I picture in my mind the terrified children or the terrified spouse or girlfriend. When there is abuse going on, everyone suffers, not just the person actually undergoing the abuse. It has wide ranging, awful ripple effects. Too often I am trying to work with someone that has already given up and just figures that there is nothing they can do and that is just the way that it is.
I am here to tell you that that is not true. Despite what you think, there are always possible options, if you chose to take them. They require fortitude, strategy, secrecy, and sometimes heartbreaking techniques, but they can be done. I refuse to believe that there is no option. Before I go any further, I need to tell you that I personally have had more than my fair share of abuse and violence in my past. I had to keep secrets that no one should have to keep. I had to live through things that no one should have to live through. So, I get it. There is no easy way out. Finally, as an adult I try my best to live a healthy life and be a good parent to my kids and be a good wife to my husband and break the former cycle. I am telling you there is a way to make it stop and move forward, even if there is no one that you currently know who can show you.
First, before you even get started you have to give yourself a moment of calm to begin planning. You need to have a relocation plan, even if it is to a safe house or local shelter. You need to set aside a separate source of funds. You need to get your papers in order. You need to be willing to stop and accept and sacrifice yourself or worse, your children as if you somehow deserve it. NO ONE deserves abuse. NO ONE! You need to value yourself and your kids enough to get the heck out of there before something irreparable happens. If it is safe to do so, you need to stand up to that partner or spouse and say look, my poor heart may love you for the rest of my life but my children and I cannot live with you another day if this crap keeps going on. If it is not safe to do that, then just get the heck away while you can and figure the rest out later. Nothing is worth risking your life, your childrens’ lives, or your mental health to stay.
I am telling you that it can be done. You can get away. You can begin to live a healthy life again. Please do not use your experiences as an excuse to re-enact the same poor behaviors to others or your kids. Please do not inadvertently teach your children that abuse is ok and that there is nothing you can do. I am living proof that it is possible. Here is the link to the National Domestic Violence Hotline. Please use it if you need it. They offer support in over 200 plus languages.
Home
1-800-799-7233
Dr. Katz
Ok so I woke up today on a Friday morning and realized I had the day off…First win of the day! Then, I realized that I was going to get to go to the fruit and veggie market and the grocery store..by MYSELF…driving my OWN CAR! Whaaaat? You are probably asking yourself….so, what’s the big deal? Well, the big deal is that something like that has not happened in like 8 months. 8 months of hospital prison, chemo, stem cell craziness, sepsis, isolation and just trying to make it out alive! This realization hit me like a kind of freight train out of nowhere, but in a good way. I was overcome with the sense of freedom and joy. I could not wait to carry out my little mundane tasks like a regular mom and wife with no risks or fears.
I practically trotted out to my car and literally patted her like we hadn’t seen each other in a long time. I jumped in and buckled my seat belt and blasted the AC DC and the Led Zeppelin with my McDonalds fountain coke in hand and jammed it out all the way to the fruit and veggie market. I was actually the first in line as the doors open. Of course, I was still careful and had my hand sanitizer in hand and my mask on, but I didn’t care! I was actually out by myself and got there without having to get a ride from someone. The fruit and veggie mart was cold like walking into a refrigerator. Lots of people were complaining. Not me! I can’t remember the last time I was cold and not just overheating. My little bald self was bouncin around that market like I had never been there. I even found myself humming a little tune. I think I amused the check out lady because she commented,” Having a good day are we?” I said ” We certainly are! I haven’t been out by myself in a very long time. I am super grateful.” I think I made her day, especially since everyone around me was complaining about the cold.
On the way home and to my next stop at the grocery store, I actually got misty eyed because I was so happy. I just couldn’t believe my good fortune at being able to do something this basic and simple. It’s amazing how much you forget enjoying the basics when you don’t get to do them for a long time. Well, on that overly happy sappy note, I bid all of you a wonderful day. Keep being grateful for what you have. Realize how good life can be before it slips away from you.
Dr. Katz
V-A-C-A-T-I-O-N. 8 little letters but such a powerful word. A word that is supposed to fill you with anticipation, joy, and a sense of contentment. Well, I gotta tell ya. I cannot fully remember the last vacation when I wasn’t either in the hospital or facing some severe health diagnosis. There was no joy or relaxation involved. The word took on a whole set of new meanings: regret, isolation, and sadness.
I am so so thankful to report that now, I am actually on vacation for the first time in a long time when I am not in the hospital or facing something imminently terrible. I am so so grateful. I get to sleep in my own bed, not tethered to machinery or ivs. I get to look out my own window and see my beautiful yard and hear the birds sing instead of staring at the same old stretch of hospital cement and brick.
Am I planning any big trips? No. It’s not safe yet. But who cares? I am out of the hospital and getting healthier every day. I get to see my family. I got to go to my little cottage the other day and just soak it all in…the water, the wildlife, my little pontoon boat. It was so wonderful. Could I swim or anything yet in the lake. No, but again, who cares. I was just thrilled to be there.
I guess my bottom line is that a the meaning and the significance of a lot of things has shifted in these last 6 months. Well, the last three years actually with multiple bouts of cancer and other health issues. The importance of that is multi fold. I am learning how to cope with different things in different ways. I am re learning what is really important in life and I am relearning how to navigate through it. I would encourage everyone to take a step back and reevaluate your life, your surroundings and what’s the most important to you even before something awful happens. It could just help save your life and help you move forward after.
Dr. Katz
I am just not sure why these terms are so intertwined and confused as frequently as they are. I feel like people think that self love and selfish are the same thing. Well, they aren’t.
Let’s break it down. Self-love is a positive trait. It includes having a positive regard for yourself. It includes having an understanding of your own self-worth. It includes treating yourself with kindness and care. It is closely related to positive self-esteem and self-compassion. It can have a positive effect on your mental health and well-being and all of your relationships. I cannot see the bad side to this. One of my favorite quotes is “Self-love is the key to a joyful life.” “Self-care is never a selfish act- it is simply good stewardship of the only gift I have, the gift I was put on earth to offer to others.”
Selfish, on the other hand, is something very different. To be selfish is to be singularly focused on one’s own needs and pleasures to the complete disregard of others. It means having no regard for how your own behavior impacts others. Other words for this would be egocentric, narcissistic and self-centered. Yep, I’m not really sure how this could ever be confused with self- care.
So I say, bring on the massages, the pedicures, the meditations, the quiet reading and the enjoyment of nature. Bring on the quiet contemplative times. Listen to that music that you want to. Do what makes you feel good. If it peripherally affects no one in a harmful way, great? Nothing to worry about. Time to carry on. If there are people in your life that become overly concerned because you are trying to care for yourself, it’s perhaps time to cast them aside like the anchors that they are and move forward with the life you would like for yourself. No one should be able to dictate how you live but you.
Dr. Katz
We are almost there
Saying it out loud
Doesn’t seem real
The Real sigh of relief isn’t for five years
The shadow monkey on my back
Constant reminder of what could be
Excited and terrified to be done
No more internal liquid defense system
Who will protect me? What will protect me?
Is hyperrvilance the answer?
Or is living my life the answer?
It’s probably somewhere in between
“The End” doesn’t actually = instant real me or whole me
Time, patience, perseverance is the key
Setting realistic expectations
That is the true challenge revealed